Reddit reviews A Headache in the Pelvis, a New Expanded 6th Edition: A New Understanding and Treatment for Chronic Pelvic Pain Syndromes

Had Chronic pelvic pain for years, tried everything, i was in pain 24/7.

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My solution was A headache in the pelvis , by urologist/phychologist from Stanford university.

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You can see my post history for more details about it.

I m pain free for some years now. Dont lose hope ma dude !!

A few things:

- I have a cushion from https://carmichaelthrone.com/ that's specially designed to keep all weight off your pelvis. They're expensive but absolutely worth it.

- See if you can find a pain doctor who's familiar with pelvic stuff. Mine has me on gralise, celecoxib, and duloxetine. They don't eliminate the pain but they definitely reduce it.

- The biggest thing you need to start changing is the mental side of it. So much of this issue is a muscle-brain feedback problem, where our pelvis hurts, so our brain makes those muscles clench, which makes it hurt even more, which makes it clench even more, and so on. For me, practicing mindfulness and focusing on every little muscle in my pelvic floor is key. It takes a lot of practice, though, so don't get frustrated if it takes a while to work.

- Speaking of, you should go to physical therapy. There are a number of different ways of attacking this issue, but the main one I've had is myofascial release. People are hesitant because it involves the PT inserting a finger up there to massage the muscles from the inside, but honestly, after the initial session anxiety, you get to where it really doesn't bother you. To put it bluntly: we regularly push out pieces of poop from there and aren't bothered by it at all, so why should we be scared of a single finger? It's not like it hurts, it's just sort of weird feeling.

- A Headache In The Pelvis is a classic. It has tons of resources and many of us swear by it. Not to mention, there are plenty of other resources that show up on that Amazon page, so there's probably something good for you in there.

- If you're a male, see a urologist about prostatitis. It's what triggers my pelvic pain, so attacking that issue could be the key to fixing all this.

Hope this helps. Feel free to message me if you want to talk.

EDIT: typo in the link

Hey there, I know this is gonna be a different answer than everyone else, but check out this book: A Headache in the Pelvis.

I found it after going to all my doctors and getting no help. After reading it, I realized that I have Chronic Pelvic Pain syndrome, which is a physical manifestation of my anxiety that causes such tension in my pelvic muscles that they began to hurt. Constantly. This caused shooting pain and/or soreness all throughout my waist, from my legs to my balls and beyond.

Three things to help solve it: stretching, a good massage therapist (who you trust to work in that area), and most importantly AWARENESS that your stress/anxiety might be causing it.

It got progressively worse over 8 years (2009-2017), and I've been able to complete eliminate it in the last 2 years (2017-2019).

Hopefully it's a step in a different direction.

It could be chronic pelvic pain syndrome. It's much more common in women but my bf had it for years before he find a physical therapist that diagnosed it. Six months later it's completely better!! Here's some info.. http://www.jeannettepotts.com, and you should check out this book http://www.amazon.com/Headache-Pelvis-Expanded-Edition-Understanding/dp/0972775552. Best of luck!

Read this: http://www.amazon.com/Headache-Revised-Expanded-Updated-Edition/dp/0972775552

Watch this: https://www.youtube.com/watch?v=4dP_jtZvz9w

Also: Stop smoking the MJ. It turned out to be one of my biggest triggers for pain. Smoking causes a sustained release of Prostaglandin E2 in the prostate which is exactly what we're trying to avoid. Load up on anti-inflamitories like Naproxen in the meantime.

I went to a urologist and went through a few cycles of anti inflammatory and anti bacterial medications. They had no effect. I'm seeing a specialist in prostatitis tomorrow after school. Hopefully he can get me some answers. I was also referred to this book by someone else here to see improvement.

And regarding coping for me its hard. My pain is like a 5/10 perpetually. It is sometimes overshadowed by all my other perpetual pain though. Not to get overly personal but ALL of my sexual interests are pretty much cut off because of this, as I rely on my prostate for my sexual pleasure. So I can't have or enjoy sex. Which sucks cause I've never even had sex before lol. I may sound really calm and collected but this actually makes me quite sad.

I know this was probably your first resource but on the off chance you haven't read it go get the book "Headache of the Pelvis"

https://www.amazon.com/Headache-Pelvis-Revised-Expanded-Updated/dp/0972775552

Best money spent and I believe its where I found my stretching specifically for pelvic floor muscles. The one on amazon right now has been updated recently I guess. I'll have to get a new copy for myself too.

My old boss wrote a book called A Headache in the Pelvis which I recommend to everyone with chronic pelvic pain that has been attributed to prostatitis. I think you may find it useful. I recommended it to someone on reddit about a year ago regarding a relative with severe pelvic pain who was considering suicide, he is doing much better now.

Just got this: https://www.amazon.com/Headache-Pelvis-Revised-Expanded-Updated/dp/0972775552 and while I haven't gotten far reading it, it seems worthwhile.

That sucks. But there is still a lot that you can do. I' d recommend you to read Headache in Pelvis first and start doing streching excercises described in this book at least 3 times a day, as well as diaphragmatic breathing and yoga in general. Try to sit as little as possible, and when you are sitting try to do it correctly in order to relieve strain on your tailbone. Fix your posture when you are walking. Avoid involuntary kegels.

After several weeks, you will be able to see whether there is some kind of progress or not. If you see some progress than you can be sure that you have some kind of PF dysfunction.

A Headache in the Pelvis might be a good read as its research mainly focused on male pelvic pain. I am female with chronic pelvic pain and the book has at least given me other outlooks and resource. Valium suppositories helped me more than oral muscle relaxers as my personal experience. I’ve also had suppositories compounded with baclofen and tetracaine (and Valium). Possibly finding a second opinion urologist or even a pain management might help getting answers. Good luck