Reddit reviews Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me
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CENTER STREET
Jordan Fisher Smith, one of the Lyme disease patients documented in Under Our Skin (a required film for Lymies!), is the only person who I am aware of who claims that he is “cured.” His treatment was long-term antibiotics, as well as Chinese acupuncture & herbs, supplements, a clean diet, exercise & proper sleep. Jordan’s struggle is partially described in a 2006 article for Backpacker—“Reality Bites: Lyme Disease”. In 2016 he said, “I was treated for 7-1/2 years and have been totally cured now for 8 years. There are others.”
Ally Hilfiger, designer Tommy Hilfiger’s daughter, wrote a (great!) book titled Bite Me, describing a nightmarish experience with Lyme that began in her childhood. She now refers to her health status not as “cured,” but instead, “managed.”
“Managed” is a term that resonates with me. I do not believe there is a cure for Lyme (if there were wouldn’t we know about it by now??), however I do know of people who find a “managed” place and are able live fulfilling lives. That is my goal, and I wish this for you too!
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FWD: The complexity of “managed” >>
💚 Thought I’d share something I just wrote to my sister. Sums up the reality that has unfolded in the past 6+ years while being treated for late-stage Lyme disease. As they say— take what you want and leave the rest:
“Oh ya there is definitely a ‘secondary lyme syndrome’ meaning lyme and/or lyme treatment will cause or enable other issues/ailments/diseases. It's a catch 22... like chemo, it can wreck you almost as much as the cancer. U just have to hope your immune system has been boosted enough after treatment to fight off anything new. Immune system will always be comprised tho because there is no ‘cure’ for lyme, the bacteria is always lurking even tho antibiotics can take care of a lot of it. U just have to try to eat clean, rest, no stress, take supplements, stay as healthy as possible so as not to allow the bacteria to take over again. Kind of like AIDS patients - they have to be really careful.”
So, there it is. Defend yourself against Lyme disease and if you suspect you have it, see a “lyme-literate doctor” to help nip it in the bud. 💚