Reddit reviews Bright Spots & Landmines: The Diabetes Guide I Wish Someone Had Handed Me
We found 2 Reddit comments about Bright Spots & Landmines: The Diabetes Guide I Wish Someone Had Handed Me. Here are the top ones, ranked by their Reddit score.
WWW.Diatribe.org
Bright Spots & Landmines: The Diabetes Guide I Wish Someone Had Handed Me https://www.amazon.ca/dp/0692875174/ref=cm_sw_r_cp_api_i_wHc5CbGMF9787
R/T1diabetes
https://onedrop.today/
These places all helped me tremendously. I'm approuching my one year diaversary soon. Welcome to the club buddy. One tip is don't feel put down by seeing people on reddit post that they've been in range all day/week whatever. Just focus on you, you got this <3
Yeah, she was "in DKA." That's what we say. Tough few days I'm sure, but I hope you have been able to take a deep breath and see that as nuts as this all probably seems right now, you'll learn to live with this and it will be ok.
I was also 6 when I was diagnosed, and almost 32 years later I am doing just fine. I identify as a person with diabetes--that's part of my identity--but it is just one aspect of who I am. Everyone has their struggles, and this happens to be ours, but it certainly didn't ruin my childhood or anything. The technology is so much better now too.
One thing to keep in mind is that you and she have plenty of time to learn how to get this under control. Until you have a feel for it, her control is not going to look like the superstars with the A1c's in the 4's and 5's that you sometimes see on here, and that is totally, perfectly ok. Insulin needs may also change a lot in the first year or two as she exits the honeymoon phase. Obviously you'll want to do what the doctors say, but in the near future there is no need to beat yourself up at all over BG control that isn't quite dialed in yet. Focus on getting used to T1D and integrating the treatment into your lives. That mindset sort of continues into the long term too: there are tons of things that impact BG, and there are going to be days that look really ugly control-wise. That's totally fine. The key is to focus on average BG and time in range over weeks and months, and not to get too hung up on the individual days. This is really hard, but just try to keep celebrating the good days and approaching the bad days with a sense of curiosity about how to do things differently next time, never with any blame or guilt.
I think the single most important thing for me early on was developing a great relationship with my endocrinologist and especially my diabetes nurse educator. I stayed with them for 25 years--grade school, high school, college, graduation and my first job... if it's good, that relationship can be hugely impactful.
Inevitably you'll have some thinking to do about CGM and insulin pumps at some point. I personally love my pump and CGM and wish that I had access to them (particularly the CGM) 31+ years ago. At the same time, I think it would have been very difficult for me to have my parents remotely monitoring my BGs all the time, especially as I got older. I don't know the answer for that situation, but something to keep in the back of your mind. As far as having a thing attached to me with a tube, it's part of my life. I don't really notice it that much. It beats having to carry around an insulin pen.
This community is extremely supportive, as are r/diabetes_t1 and r/diabetes. As far as books, lots of people recommend Think Like a Pancreas, and I think Bright Spots & Landmines is a good one too. Good luck, and hopefully we'll continue to see you around as questions come up.