Reddit reviews Healing Lyme: Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsiosis, 2nd Edition
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Ships from Vermont
you want everything we know? I have a giant notepad full of info...
https://www.ilads.org/patient-care/provider-search
https://www.lymedisease.org/members/lyme-disease-doctors/
TREATMENT:
BUHNER PROTOCOL:
https://www.healingwell.com/community/default.aspx?f=30&m=4127022
http://buhnerhealinglyme.com
https://techpost.io/hacking-chronic-lyme-disease-and-co-infections/
Disulfiram
(new treatment that not many LLMD’s are using):
https://www.lymedisease.org/disulfiram-kinderlehrer/
https://clinicaltrials.gov/ct2/show/NCT03891667
https://recruit.cumc.columbia.edu/clinical_trial/1661
There’s a private Facebook group too
COWDEN:
(need links)
BLOODWORK INFO:
Lyme-specific bands: 23, 31, 34, 39 and 83/93
BARTONELLA:
https://youtu.be/uYEHsRRxrQw
http://www.townsendletter.com/July2015/bartonellosis0715.html
BOOKS:
Stephen Buhner, Healing Lyme
https://www.amazon.com/Healing-Lyme-Borreliosis-Coinfections-Rickettsiosis/dp/0970869649/ref=sr_1_2?keywords=Buhner+healing+lyme&qid=1567635287&s=gateway&sr=8-2
Stephen Buhner, Healing Lyme Co-Infections
https://www.amazon.com/gp/product/1620550083/ref=ox_sc_saved_title_5?smid=ATVPDKIKX0DER&psc=1
Unlocking Lyme
https://www.amazon.com/gp/product/0982322526/ref=ox_sc_saved_title_4?smid=ATVPDKIKX0DER&psc=1
Why Can’t I Get Better?
https://www.amazon.com/s?k=Buhner+healing+lyme&ref=nb_sb_noss_2
Cure Unknown
https://www.amazon.com/gp/product/1250044561/ref=ox_sc_saved_title_6?smid=ATVPDKIKX0DER&psc=1
Believe Me - Yolanda Hadid (celebrity)
https://www.amazon.com/Believe-Me-Invisible-Disability-Disease/dp/1250132770/ref=sr_1_1?keywords=lyme+yolanda&qid=1567635346&s=gateway&sr=8-1
Bitten
https://www.amazon.com/Bitten-History-Disease-Biological-Weapons/dp/006289627X/ref=pd_sbs_14_9?_encoding=UTF8&pd_rd_i=006289627X&pd_rd_r=2275bf65-9f9d-4e9d-bd21-f907c727b622&pd_rd_w=FyN0V&pd_rd_wg=yhka3&pf_rd_p=1c11b7ff-9ffb-4ba6-8036-be1b0afa79bb&pf_rd_r=2GVJQT1XQ2PXA4R98XYH&psc=1&refRID=2GVJQT1XQ2PXA4R98XYH
ARTICLES:
https://www.elephantjournal.com/2016/04/i-survived-lyme-disease-and-you-will-too/
https://globallymealliance.org/marisol-thomas-existing-with-late-state-neurological-lyme-disease/
https://affairsofliving.com/blog/2010/12/9/my-lyme-disease-is-not-the-idsa-lyme-disease.html
https://www.theatlantic.com/magazine/archive/2019/09/life-with-lyme/594736/
https://www.lymedisease.org/mylymedata-catherine-fox/
https://blogs.scientificamerican.com/observations/its-time-to-get-serious-about-tick-borne-diseases/
https://folks.pillpack.com/the-worst-thing-about-lyme-disease-is-what-it-does-to-your-mind/
https://www.huffpost.com/entry/what-lyme-disease-feels-like_b_7539130
https://www.huffpost.com/entry/its-a-scandal--daryl-hall_b_11118332
SYMPTOM LISTS:
https://canlyme.com/lyme-basics/symptoms/
https://www.prohealth.com/library/a-deep-look-at-the-symptoms-of-six-major-lyme-related-infections-41139
https://www.lymedisease.org/lyme-disease-symptom-checklist/
DOCUMENTARIES:
https://underourskin.com
DETOX METHODS:
https://www.tiredoflyme.com/detox-methods.html
http://www.ladyoflyme.com/blog/burbur-drops-lyme-detox
https://affairsofliving.com/blog/2010/7/5/helpful-hints-for-battling-a-herxheimer-reaction-or-my-adven.html
Binders:
https://alisonvickery.com.au/binders/
Make the body alkaline:
Detox baths and sweating (20-30min):
For headaches and histamine reaction:
Brain/nerve detox:
HEALING:
SUCCESS STORIES:
https://www.healingwell.com/community/default.aspx?f=30&m=3683338
HOPE:
https://www.outsideonline.com/2402641/kirby-morrill-appalachian-trail-stabbing
https://www.runnersworld.com/news/a28677255/jeannie-rice-half-marathon-age-group-world-record/
THE GODFATHER OF LYME:
Dr. Joseph Burrascano
https://vimeo.com/306846706
https://www.lymedisease.org/history-lyme-disease-burrascano/
https://holisticprimarycare.net/topics/topics-a-g/chronic-disease/1184-shape-shifters-hidden-accomplices-a-natures-dirty-needles-confronting-the-challenges-of-lyme-disease-sp-858975690.html
https://lymediseaseassociation.org/about-lyme/medical/treatment-guidelines/
Dr Horowitz
https://vimeo.com/channels/ldnresearchtrust/359020273
says Lyme can be transmitted from mother to fetus
“Lyme causes psych symptoms”
Dr Armin Schwarzbach - German Lyme specialist at Armin Labs
https://vimeo.com/channels/ldnresearchtrust/113603875
He says “Multiple Sclerosis is just a collection of symptoms, and Lyme bacteria can be the cause of it.”
I did 3 years of LLMD treatment, which helped with some symptoms, but I still have disabling fatigue. I've been off treatment for about two years.
Now I'm going more of an herbal route. I'm putting more stock in herbs than in vegetables and diet. I maintained a healthy low-carb diet throughout my LLMD treatment but kept worsening anyway.
My plan is to do Buhner's core protocol from Healing Lyme, but I'm DIY'ing some of the extracts so it'll be 2-3 months before I start.
Here's a breakdown of the core protocol:
You may notice that of this long list, only one item is actually killing Lyme bacteria. If you're interested in what he means by endothelial protection, cytokine remodulation, etc, I can expand on those.
Since you're having so much trouble with your joints, you may want to try the collagen and endothelial protectors.
Buhner also has additional protocols to target specific symptoms, including an expanded collagen support protocol. I don't have trouble with my joints, so I'm planning on doing the chronic fatigue protocol after I've incorporated all of the above.
All of that is just what I'm planning to do, though. What I'm doing now is a mishmash of things that I got from a redditor:
I never had recognizable herxes from antibiotics, but am having them now, so I do think it's working. The monolaurin seems to be the worst herx trigger, and I'm increasing my dosage very gradually.
I want to note that I don't just start taking all this stuff all at once. I add one thing in at a time, maybe once every 5-7 days, and I start at a low dose and work up unless the dose is just one capsule. Because if I have a bad reaction, I want to know what is causing it. I also carefully track when I start what, and when I increase my dosages (I was a scientist in my former life).
So it will take a good bit of time to get fully on the Buhner protocol.
As a side note, treating with DMSO kinda freaks me out, because I used to work with DMSO in the lab. I was highly aware that it could permeate my skin, bringing along whatever chemotherapy drug I was working with that day! But it makes perfect sense that it works as a topical carrier, and it's good to hear that it's helping you.
The herbs are Colloidal Silver and Skullcap. Then I've been taking this stuff called Cholestoff that is supposed to help remove the lyme toxins from my body. I feel like that has worked the best. Perhaps I killed the lyme from all of the antibiotics / antimalarials, and then these herbs have been removing the toxins from my system lessoning the symptoms. At least that's what my Naturalpath says. I went to her to test if I might have mold sensitivities which were causing my symptoms to be worse. The tests she ran told me that my body wasn't able to remove the lyme toxins properly, thus causing the symptoms to remain even if the Lyme and co-infections may be gone. Please take this with a grain of salt. I'm not 100% sold on the science behind this method, (Shoemaker protocol) but like I said, I exhausted my run with antibiotics and this has seemed to have helped.
Also look into Stephen Buhner's Healing Lyme book. Or you can look it up online. I've also been taking some supplements from his regimen, specifically Cat's Claw, which is supposed to help with the joint pain. The Buhner protocol seems to help a lot of people and I've seen it recommended on r/lyme before, but I haven't tried it out completely myself. Let me know if you have any questions.