Reddit Reddit reviews Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery

We found 2 Reddit comments about Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery. Here are the top ones, ranked by their Reddit score.

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Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery
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2 Reddit comments about Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery:

u/makafre · 1 pointr/offmychest

Don't freak out! :-) I was diagnosed with MS this year and yes I was freaking out too but.....you know what? Even if it's MS that you end up having as a diagnostic, be reassure that most of us fully recover within a few months. We are then also lucky that nowadays in 2015 there are plenty of solutions for you to live a long life without any real disabilities; I don't know for how long you will have to wait for the diagnostic to come but until then I have 2 suggestions: take 10,000iu/daily vitamin D (it's really safe) and read a book such as this one: http://www.amazon.ca/Overcoming-Multiple-Sclerosis-Evidence-Based-Recovery/dp/1742371795/ref=sr_1_1?ie=UTF8&qid=1450484985&sr=8-1&keywords=jelinek which really gives high hope and his clinical trial shows that it improves quality of life (the site is https://overcomingms.org/). :-)

u/Terminal-Psychosis · 1 pointr/MultipleSclerosis

I like this a lot:

Overcoming Multiple Sclerosis: An Evidence-Based Guide to Recovery

and they have a pretty cool website: https://overcomingms.org/

I also like Terry Wahls book:

The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles

Her website: http://terrywahls.com/


Aside from that, I've done tons of research on the drugs and methods of diagnosis. Not all of it is pretty. Some of the harder to find stuff is pretty eye opening.

Basically MS is a huge pile of different symptoms that they just group together under the name. They don't really know how or why it happens, or why the drugs they give (sometimes) help.

There has been a large push lately to diagnose MS earlier. 10 years ago they'd not have told me I have MS. In one way this is good for patients, they can get the help they need earlier.
On the other hand, the docs might miss something else that they just group under the big umbrella they call "MS".

For example, Lyme disease might look like MS in some people.

As for drugs, the first ones they put everyone on, Interferon (rebif, avonex), and Copaxone have a horrible success rate. Something like 30%. That combined with all the side effects really makes them iffy. The doctor won't tell you that, and it defo is not advertised on the more mainstream (drug industry funded) MS "help" sites.

Hope that gives you some ideas where to start. Don't believe everything you read right off. Defo do your research on the drugs yourself! And watch out for the trap on most ms help sites. There's a cult of drug worship that can be pretty toxic.

I say drugs can be useful. I wouldn't tell anyone to stop taking them, but they can only help an otherwise healthy lifestyle.

Take care.