Reddit Reddit reviews The Chronic Pain Solution: Your Personal Path to Pain Relief

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The Chronic Pain Solution: Your Personal Path to Pain Relief
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1 Reddit comment about The Chronic Pain Solution: Your Personal Path to Pain Relief:

u/sassafras1497 ยท 1 pointr/cfs

Lots of great advice here already. I'd also suggest keeping a diary--which sounds like more work, I know--but in the long run, it will help you evaluate what helps and hurts your fatigue and pain management. You can keep it simple, just rate how you're doing on a scale of 1-10 in categories like overall fatigue, brain fog, joint pain, etc.

It really sucks that your parents don't understand what you're going through. If you haven't already, it might be time for an "intervention" of sorts. Show them this post. Print out a few articles for them to read. Tell them in no uncertain terms that while being tired and achey might seem like a minor issue, the chronic nature of your symptoms is actually a huge problem.

An example most people can relate to: having a cold with a cough. It's annoying. Usually a cough interrupts a few nights worth of sleep. But if it lingers for a week, or two, or more--the lack of sleep compounds on itself, the cough never improves, and at that point all anybody wants is the cough to go away. It starts to drive a person crazy. And that's nothing compared to 24/7 365 fatigue and pain.

If you can get your parents to understand and give you greater support, wonderful. If not, find someone else who can be an advocate for you--a friend, another family member, or a trusted teacher. Bring that person to your doctors appointments so they can listen, ask questions, and chime in when you might be otherwise overwhelmed. I would have suggested your boyfriend, but it sounds like he's overwhelmed himself at the moment.

Another thought about doctors: you may need a new approach. Set small goals (i.e. reduce the frequency of afternoon naps), see what else they can offer besides medication. If they're inflexible and won't work with you and your needs, consider a new doctor.

Lastly, you may find that certain therapies or treatment alternatives don't work alone, but may work in combination. You have a lot on your plate, and it must be so overwhelming, but the only way you're going to find relief is to keep trying new things. I'd recommend checking out The Chronic Pain Solution for additional ideas. The author maps out everything from surgical intervention to posture practice to yoga, and more.

Oh, and whatever you do, stagger new treatments. I once started 6 supplements the same day and couldn't figure out which one(s) were working and which ones made me feel crappy. I now give myself a week (at least) to adjust before layering in another treatment (this goes for things like gentle physical exercise, mental puzzles, etc. as well). The diary will help you track your results.

You've done great work so far. Take a moment to thank yourself for being proactive about your situation. It's a tremendous feat, and you should be proud!