Reddit reviews The FPIES Handbook: Information for Parents and Caregivers, A research based reference for navigating Food Protein-Induced Enterocolitis Syndrome
We found 1 Reddit comments about The FPIES Handbook: Information for Parents and Caregivers, A research based reference for navigating Food Protein-Induced Enterocolitis Syndrome. Here are the top ones, ranked by their Reddit score.
My son was diagnosed with FPIES after having a severe vomiting episode. We had just switched pediatricians, and our new one told us to go to the ER for fear of his blood sugar bottoming out. The ER treated us like shit and said the issue was a stomach bug, despite of telling them our doctor said to come.
Regardless, FPIES does not have a test and what triggers it for one baby does not do it for another.
Not all pediatricians have heard of it, same for pediatric allergists. Our original pediatrician didn't care and just kept pushing medications down our sons throat. Our new one, who has experience with FPIES determined it by that trip to the ER based on symptoms that sent us there.
This book has been extremely helpful The FPIES Handbook