Reddit reviews The Vulvodynia Survival Guide: How to Overcome Painful Vaginal Symptoms and Enjoy an Active Lifestyle
We found 2 Reddit comments about The Vulvodynia Survival Guide: How to Overcome Painful Vaginal Symptoms and Enjoy an Active Lifestyle. Here are the top ones, ranked by their Reddit score.
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I was diagnosed with vulvodynia (officially) earlier this year after 11 years of pain and not knowing what was wrong, The biggest thing for me is just knowing that there is someone I can vent to if I wanted to.
My partner is amazingly supportive, but It's very hard to keep a relationship when you feel like you are broken. There is a lot of stress there and sadly I don't have anyone other than my partner and my physio to vent to. I think your sister is in a great position because she has you, and it sounds like you are willing to do what you can.
If she hasn't already seen a sexual Therapist I think it would be a great idea for you to mention it to her and see if you can help her find one. Often people confuse a sexual therapist with a couples therapist so many single people miss out of the great advice they can offer.
I saw a therapist for years to try and cope with depression, But the problem was that I was depressed because I was in pain, but most therapists treat the depression like a separate issue. A sexual therapist is trained to realise that genital pain is often the cause of low spirits or anxiety, and they can give real, practical advice to help fix the problem not the symptom.
It's a bit hard to offer advice without knowing what stage of diagnoses, management or treatment your sister is currently at, There are pain medications she can be talking to her doctors about, Physiotherapy exercises she can be undergoing with a women's health specialist and tons of books she can read on the subject. Explain Pain By the NOI is a general one on managing pain, and The vulvodynia survival guide which is more specific.
You might like to read them yourself to try and understand what your sister is going through, or perhaps buy them as a gift.
The most important thing that you can do to help your sister is to remember that her pain is real, It's not to be dismissed, If she does get to a point where she is wining or complaining or constantly avoiding things, it's because she is in pain. My partner lacks a vagina so as much as he feels empathy, he will never understand just how painful every day can be, and often he gets frustrated when I have to stop, go slow or have a cry because I sat down at the wrong angle.
10 years here!
You can also see a pain specialist/ pain clinic. They may know more about your chronic pain.
Physiotherapy is excellent! I started about 6 months ago and it has helped but there is still a ways to go. I also use a TENS machine and some medication to keep it under control.
This is a very good book : http://www.amazon.ca/Vulvodynia-Survival-Guide-Overcome-Lifestyle/dp/1572242914/ref=sr_1_1?ie=UTF8&qid=1312611892&sr=8-1 and helped immensely.
It's a lot of patient heal thyself right now, unfortunately. It's a pervasive disease that isn't widely studied, but it's getting better every day. OUr greatest weapon as patients is knowledge, however, and I'm telling you that book is great. It has some reasources too in the back as well.
Hope it helps! I have an AMA (I searched for other vulvodynia stuff and found this awesome thread), so AMA if ever you need!