Top products from r/CRPS

Thank you so much! I just found this one on Prime. It looks pretty good :)

https://www.amazon.com/SIT-Yoga-Michele-Fife/dp/B016I7K3CS/ref=sr_1_1?s=instant-video&ie=UTF8&qid=1483242342&sr=1-1&keywords=chair+yoga

Here you go
I think it's great and definitely helps. It should for the price! I sleep on it as well as sit on it.

Hi Sam,
CRPS really does stink. Have you looked into Ketamine Infusions at all? It really can help the pain but it is very important to find a provider who is doing them that really knows how to treat CRPS. For me it is the only thing that helped my pain at all nothing else worked at all.
I know you mentioned finances are tight. There are some Ketamine Providers that will take insurance for infusions but you may have to travel to find one.

This book is a great resource if you decide to get Infusions,
https://www.amazon.com/Ketamine-Infusions-Patients-Everything-infusions/dp/1689436964/ref=sr_1_1?keywords=Ketamine+Infusions&qid=1570942478&sr=8-1

Omg Thank you!!! Stupid brain fog. I could think of paragraphs on the subject, just not the word Desensitzation. Drove me crazy. For what it's worth, that was the first thing the Barrows Neurologist had to say after reviewing other doctor's diagnoses. Desensitzation is key when dealing with allodynia.


https://www.amazon.com/Educational-Insights-Teachable-Touchables-Texture/dp/B000KI7C7G/


Here's the set i got for mine. I had to work my way up to the rougher ones. (When I showed my PT this, she bought her own for her patients!)


Good luck!

Hot Socks, these are the exact ones I got: https://www.amazon.com/dp/B07HHMBPH7/ref=cm_sw_r_cp_apa_Dcz7Bb8AZKN8P

It looks like they're not too well stocked right now, but there are some similar products suggested on the site. I've seen battery operated heated socks/gloves/jackets too. I got them last winter. They're nice for when we're hanging out in the living room and my throw blanket isn't quite cutting it. Then I have my heating pad set up in the bed.

I have not seen this mentioned yet: Mirror box therapy

The studies conducted show it has better results with CRPS Type I than Type II.

Here's links to a couple papers, A and B. Definitely search Google Scholar and whatnot for more academic papers.

Here's an amazon link to buy a mirror box. However I built one for $20 using tape, corrugated plastic board, and a mirror. My physical therapist brought this method to my attention, and it helped me immensely with swelling, range of motion, and pain in my foot.

Also, I recommend the book Full Catastrophe Living by Jon Kabat-Zinn.

It's a tough diet that certainly isn't for everyone, but for me it has very literally saved my life. It's unlikely to hurt anyone to try it for a few weeks to see if you feel better or not.

A book I recommend to help get started is:

Is Food Making You Sick?: The Strictly Low Histamine Diet https://www.amazon.com/dp/1925110613/ref=cm_sw_r_cp_apa_i_pAbuDbPE3C8TV

And a website I've found useful, especially for its foods lists is:

https://www.histaminintoleranz.ch/en/introduction.html

https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.histaminintoleranz.ch/downloads/SIGHI-Leaflet_HistamineEliminationDiet.pdf&ved=2ahUKEwjJpb7_9PrjAhUHvKwKHQhXAl8QFjADegQIBBAI&usg=AOvVaw3nmFNxgqau0Jntis-Q9E8d

In my personal experience and knowing others who tried the diet, if they were strict with elimination, they noticed significant changes in pain and inflammation and neurological problems within 2-3 weeks. Having been on variations of the diet since 2015 myself (and still learning what foods are difficult for my body specifically), I can literally tell when I've had too much histamine within 30 minutes of ingesting the high histamine food (bladder is the first thing to hurt, then my CRPS legs / back, etc.). I also know that it usually takes about 72 hours for my body to calm down after I've been in histamine overload, assuming I've been able, since the high histamine trigger, to keep my histamine intake and my stress (a significant factor) as low as possible.

Hope this helps a little!

I'm so sorry you (and I) are going through this. I'm an adult, and I have it in my knee as well. I also don't have the allodynia (the pain when touching the skin). This is just a random list, but here are things that people in my local CRPS group have said that's helped them, and what's helped me:

• Graded Motor Image therapy. There is a book you can work through.
  
• Low Dose Naltrexone (I take 4.5 mg/day)
  
• Gabapentin (I take 300 mg 3x/day)
  
• Nortriptylene (I take 50 mg/day)
  
• Duloxetine (for me it's for depression, which you probably have. It can help with pain too. 60 mg/day was where I started)
  
• Neridronate Infusion (I haven't tried this yet but want to. There's a place in Italy that does it).
  
• Ketamine Infusions (this helped me a good amount, although it took a week or two to start helping).
  
• Ketamine cream (I just got mine, haven't tried it yet).
  
• TENS or Vecttor or similar electrotherapy.
  
• Swimming physical therapy
  
• Nerve block (the spinal nerve block didn't help me but the genicular nerve block right in the knee helped)
  
• Nerve ablation (that will be my next step)
  
• Spinal cord stimulator or DRG stimulator. There are also new stimulators implanted in the leg or arm themselves instead of at the spine. Please try this before you give up, some people swear by it.
  
• PRIALT - A drug that came from cone snail venom.
  
• EDIT TO ADD: CBD oil and/or marijuana (I can't try this due to my work)