Top products from r/braincancer
We found 8 product mentions on r/braincancer. We ranked the 6 resulting products by number of redditors who mentioned them. Here are the top 20.
1. Mega Bloks First Builders Big Building Bag with Big Building Blocks, Building Toys for Toddlers (80 Pieces)
Sentiment score: 1
Number of reviews: 1
80 classic-colored building blocks, including special shapesPerfect for little handsHands-on play for early childhood developmentStorage bag for easy cleanupCombine with other Mega Bloks preschool toys and build them up!
2. 100 Questions & Answers About Brain Tumors (100 Questions and Answers About...)
Sentiment score: 1
Number of reviews: 1
3. AOR, benaGene, Supports Healthy Aging, Energy and Longevity, Dietary Supplement, 30 servings (30 capsules)
Sentiment score: -1
Number of reviews: 1
KEY TO A HEALTHY LIFE Our stabilized form of oxaloacetate, the world's first novel and natural compound to help stimulate energy and longevitySUPPORTS ENERGY Oxaloacetate helps convert NADH into NAD, a niacin-derived coenzyme key to the production of ATP and improved energy levelsONE CAPSULE DAILY T...
4. Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About
Sentiment score: 2
Number of reviews: 1
5. HEADACHE HAT The Original - Wearable Flexible Three Row Ice Pack for Migraines & Headache Relief Eye Mask Long Lasting Cooling No Mess Ice Therapy Stress Relief Tension Relief Standard Size (Black)
Sentiment score: 1
Number of reviews: 1
LET YOUR MIGRAINES FREEZE AWAY- Are recurring migraine headaches interrupting your daily routine? Headache Hat is a patented, awarding winning holistic solution to your pain problems. The Headache Hat provides stylish comfort and fast cooling relief through a unique design that is 100% controlled by...
It's tough to predict how everything is going to happen as it is so variable from person to person. From my experience, I would say to not let the diagnosis hang over your family like a dark cloud. Treat her like you normally would treat her (maybe a little extra nice). I do not mean to scare you, but try and spend as much quality time with her as you can, cause you never know when things can turn poor.
Another thing I would recommend is to read some books on it. There are plenty of choices at most libraries (depending on the size of your town of course). I enjoyed this one, as it answered some FAQs about brain tumours, and had perspectives from both clinicians and patients. :https://www.amazon.ca/Questions-Answers-About-Brain-Tumors-ebook/dp/B003K15EWA
My loved one had this diagnosis and they had a pretty good quality of life until close to the end. Given that it is a tumour that affects the nervous system though, there are a variety of possible symptoms to expect. If you have any specific questions at any time, feel free to message me and I can share my experiences and give advice the best I can.
Thank you so much for responding!!! I really appreciate it! And I'm glad to hear that you did very well immediately after your surgery.
So, just to sum up:
And can I ask, if you don't mind, what are the headaches and cognitive stuff you dealt with that prevented you from going back to work? Do you feel the quality of your life has drastically suffered? If you were in this situation (a bit older, with children in their early 20s, very little family/social support), what long-term advice would you give to your kid?
The standard of care has a 25% 2 year survival rate according to my wife's neuro oncologist. My wife is 26 months out from her initial diagnosis and surgery, she's had a second surgery for a recurrence last January and is currently having Avastin infusions which seem to be working. Here is a site that has a document that summarizes the current treatment options and other approaches:
https://www.virtualtrials.com/noteworth.cfm
I highly recommend Ben Williams document Treatment Options For Malignant Gliomas - Aug 2017 Update.
It is found on this page:
https://www.virtualtrials.com/williams.cfm
I just finished reading Dr. Williams book about his glioblastoma survival:
"Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About"
https://www.amazon.com/gp/product/B00FDWPQWC/ref=dbs_a_def_rwt_hsch_vapi_tkin_p1_i0
He has some good criticisms of the standard medical approach. His ideas of throwing everything practical at fighting the tumor seems logical. I'm trying to get my wife to add to all the non medical supplements and things she takes, in addition to the Avastin.
There apparently is a film related to this work, I haven't seen it yet, but it looks interesting.
https://www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/resources/surviving-terminal-cancer-film/
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Best of luck to you, don't rely on the statistical predictions and fight your own fight.
My father-in-law has stage 4 GBM and he really seems to like electronic football. Brought back lots of good memories for him.
http://www.amazon.com/Mattel-Classic-Football-Handheld-Game/dp/B00005BULI
No problem.
You can see more here:
http://cronaxal.com/
It's also sold as benegene.
https://www.amazon.com/Advanced-Orthomolecular-Research-AOR-Benagene/dp/B004VEKL3M/ref=sr_1_1_s_it?s=hpc&ie=UTF8&qid=1496617106&sr=1-1&keywords=benaGene&th=1
I can completely relate, I used to program in my high school years, but now I own a detailing shop and have employees and other families at risk if I don't succeed. I highly recommend following the Butterscotch Shenanigans Podcast and watching their entire series. I watched it years ago and again after my diagnosis.
https://www.amazon.com/Clip-Dev-Diary/dp/B071RRDG74