Reddit Reddit reviews Caregivers and Personal Assistants: How to Find, Hire and Manage the People Who Help You (Or Your Loved One!)

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1 Reddit comment about Caregivers and Personal Assistants: How to Find, Hire and Manage the People Who Help You (Or Your Loved One!):

u/lotus_pond54 ยท 2 pointsr/aspergers

Hiya, That all rings a bell of some sort with me (having to get it together and doing it, don't fuss). Taking a bit longer view on the matter, there is a point where things can get to be "too much", and because of the invisibility of ASC (for the most part) and the encouragement for masking and so on, sometimes called ableism, I think, there may come a time to be aware that "this wave is not my wave to ride, it will simply sink me or keep me sunk". Folks don't get the "unevenness" bit about ASC, where somebody may be able to do arithmetic but not keep the financial books, etc. It's tough to explain and it can vary over time, given whatever else is going on in one's life. Kudos to 33yo Dad, hope he is able to maintain throughout at this level of competence! It may not be that way forever for everyone with ASC, no matter how much effort one puts in. At some point, being kind to oneself (and those around one), by rounding up help, may be appropriate.

To that end I point out this book which made a huge difference for me when I got to the point in life where "downsizing" became the present reality, like it or not. This book is really empowering, to know that when "autistic burnout" or "autistic inertia" come over one, there is the possibility of assistance. Being able to round up what you need, even if you cannot explain to people WHY you cannot do x, y or z yourself, is useful, in my experience.

https://www.amazon.com/Caregivers-Personal-Assistants-Manage-People/dp/0962110612